QUALITY YOUTH MENTORING FOR INCLUSION
Description of the PROJECT
The aim is to create a network of national rare disease organisations to design and implement an empowerment strategy for young people living with barriers to become mentors and big brothers to other young people and children experiencing the same barriers from all over Europe, in order to guide them in a virtual way to develop their self-confidence, learn about their situation and consequences, and discover mechanisms to achieve inclusion.
The objectives
INCLUSION
SKILLS
QUAILITY OF WORK
MENTORING
NETWORKING
The results
R1: METHODOLOGICAL GUIDE FOR THE TRAINING AS BIG BROTHER OF YOUNG PEOPLE WITH RARE DISEASES
A complete and high-quality digital document that offer social entities, non-formal training schools, NGOs, Foundations and public institutions, all the necessary knowledge to train young people with disabilities resulting from muscular dystrophies and rare diseases to act as big brothers and sisters.
R2: NON-FORMAL RESOURCES FOR THE INCLUSION OF YOUNG PEOPLE WITH RARE DISEASES
Simple resources that will help to solve all the doubts that young people may have and that help them to deal with the disease on a day-to-day basis. These are very important materials for BIG BROTHERS FOR INCLUSION, not only to improve their empowerment, but also because they will use these materials with their younger brothers and they will help them to overcome their barriers, their lack of confidence and their loneliness.
R3: “YOU’RE NOT ALONE” NETWORK
A network of social entities with expertise in rare diseases and with great impact at European level that will build a partnership for joint cooperation in the medium and long term in order to foster investment in research on rare diseases (RD), encourage the inclusion and active participation of young people with RD through the project QUALITY YOUTH MENTORING FOR INCLUSION, and to become a recognized advisor on rare diseases to national and European governments.
R4: “BIG BROTHER FOR INCLUSION” PLATFORM
A digital platform that not only provide information about the project, but also a tool for young people with RD to apply for a big brother or apply to become one. This platform will allow to put the young person in contact with their older or younger brother and with the rare disease entity in their country. It will also provide information on how to develop the relationship.
R5: VIRAL CAMPAIGN «A BIG BROTHER TO REACH THE FUTURE»
A viral campaign on a European scale that will focus directly on social networks, as they are an important tool for socialization for young people with rare diseases.
Transnational Meetings
Madrid
July 24th, 2023
Fundación Isabel Gemio, host organization
Rome
February 16th, 2024
Parent Project APS, host organization
Nicosia
September 23rd, 2024
Cyprus Alliance for Rare Disorders, host organization
Latest NEWS
IMPACT
The project had a significant impact on across different areas […]
In addition to these young people with rare and neuromuscular diseases and dystrophies, we have also had a very positive impact on: […]
The partnership
QUALITY YOUTH MENTORING FOR INCLUSION
The Erasmus+ project is co-funded by the European Union.
The European Commission support for the production of this publication does not constitute an endorsement of the contents which reflects the views only of the authors, and the Commission cannot be held responsible for any use which may be made of the information contained therein. This publication is available in Open Access under Creative Commons license, under the conditions: Attribution-Non Commercial-Share alike (by-nc-sa) license. By using the content of this publication, the users accept to be bound by the terms of use of the ERASMUS PLUS.
